Naitbabies are a non-profit organisation formed to raise knowledge and awareness of a rare but potentially serious genetic disorder most people have never heard of – Neonatal alloimmune thrombocytopenia  NAIT (also known as FNAIT – fetal neonatal alloimmune thrombocytopenia). Registered in the United Kingdom we are the only patient organisation for this disease and we provide support worldwide.

NAIT is a blood related disease that can affect the fetus or newborn due to platelet antigen incompatibility between mother and baby affecting around 1:1000 neonates, this may cause the mother to produce antibodies in response to certain antigens that the fetus has inherited paternally. Antibodies then attack the antigens, destroying platelets in the baby putting him/her at risk of spontaneous bleeding into the brain (Intracranial hemorrhage), stomach or spinal chord thus putting baby at serious risk of death or brain damage causing lifelong disabilities.

NAIT is the platelet equivalent of HDFN – Hemolytic Disease of the Fetus and Newborn (commonly called Rhesus Disease) a red blood cell disease. HDFN is screened for prenatally and has been for some years. No country screens for NAIT although it is very well documented and there is treatment for subsequent NAIT pregnancies. Rarer diseases are screened for. Naitbabies goal is to see prenatal screening for all pregnant woman for this disease.

 

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Please note that we are not medical doctors. All references and materials are for educational and information purposes only. Research and treatment protocols are ongoing.
Always consult a qualified medical specialist in this field. Cases of neonatal alloimmune thrombocytopenia should be managed in Fetal Medicine Units.

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If you would like information or to be put in touch with our private support group please message us on our contact page. Or,  if you are on Facebook you can send a message to us via our Facebook page here.

 

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Naitbabies is a Member of

Genetic Alliance UK

Rare Disease UK

Orphanet - Naitbabies

Australian NAIT Registry

Australian NAIT Registry

PROFNAIT Project

PROFNAIT Project

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