Translation
Donation
FNAITPROJECT
Prophylix Pharma AS (PPAS) is a Norwegian Biotech company whose aim is to develop a prophylactic medicinal product that will prevent NAIT/FNAIT.
For further information visit prophylixpharma.com.
Newsletter
Naitbabies is a Member of
Australian NAIT Registry
Links
Hello and Welcome to our Website!
www.naitbabies.org is a non-profit organisation that has been created to raise knowledge and awareness of a genetic disorder most people have never heard of, neonatal alloimmune thrombocytopenia or NAIT. (Also known as FNAIT - fetal and neonatal alloimmune thrombocytopenia, FMAIT - feto-maternal alloimmune thrombocytopenia, NATP or AIT).
It is a blood related disease that can affect fetuses or newborn babies due to human platelet antigen incompatibility. Platelets are a type of blood cell involved in blood clotting. This can cause the mother to produce antibodies in response to certain antigens, (structures that can be recognised as foreign), that the baby has and the mother doesn’t. These antibodies attack the antigens, destroying platelets in the baby who is then at risk of spontaneous bleeding into the brain (ICH), stomach or spinal chord. Babies can be at serious risk of brain damage or death.
NAIT is analogous to HDFN – Hemolytic disease of the fetus and newborn - a red blood cell disease.
----------------------------
We are not medical doctors. All references and materials are for educational and information purposes only. Research and treatment protocols are ongoing. Always consult a qualified medical specialist in this field. Cases of neonatal alloimmune thrombocytopenia should be managed in Fetal Medicine Units.
----------------------------
If you would like information or to be put in touch with one of the support groups please send a message to our contact page and add your Country. If you are on facebook you can send a message to Naitbabies.org via our facebook page here. There is a secret Nait group on facebook we can add you to, which is totally private and for members only, comprising parents/relatives from many different countries. It may be that there is a member near you. To join the the open Yahoo Health NAIT Group click here.
----------------------------
Prophylix Pharma AS (PPAS) is a Norwegian Biotech company whose aim is to develop a prophylactic medicinal product that will prevent NAIT/FNAIT. For further information visit www.prophylixpharma.com.
3 Peaks Challenge 2012 for Naitbabies
This event will take place on 21st July 2012
The National Three Peaks Challenge is an exhilarating and demanding walking challenge that involves visiting some of the most spectacular mountain scenery in Britain. This team event will visits Ben Nevis in the Scottish Highlands, Scafell Pike in the English Lake District, and Snowdon in the Snowdonia National Park, north Wales.
Click image to enlarge and save
The mountains climbed, in order of elevation, are Ben Nevis in Western Scotland, 1,344 metres (4,409 ft), Snowdon in North Wales, 1,085 metres (3,560 ft), and Scafell Pike in North-Western England, 978 metres (3,209 ft). In all the challenge involves some 42 kilometres (26 mi) of ascent and descent, with total travel approaching 765 kilometres (475 mi).
Ben Nevis
Scafell Pike
SnowdonAnyone wanting information on how to join us or any questions please click here.
Video - 3 Peaks training Snowdon 20th Nov 2011
http://www.youtube.com/watch?v=dNMckkIVpH4&feature=youtu.be
We are intending to hold another training climb of Mount Snowdon on April 22nd - Update!! This was a great success and gave a taster for July! Photo's
Thanks to the following for making this exciting event possible:
Gary Gill Building Services, London - Gary Gill - organiser
Sponsors
T.A.P. Mechanical Services G & T Building Services
GBS Property Services Aspect Property Management
HSJ Inns Landmark Groundworks Ltd, Esher, Surrey
Colorite Paint Co
R Hooper
2012 - Jewellery and gifts sale at The Shamrock, Falcarragh, Co Donegal, Ireland.
Thanks to the lovely people of Donegal for supporting Louise and Maureen Gill's NAIT awareness jewellery and gifts sale and raising a grand total of £205!! (€250)
2012 - NAIT Spring Break Party, Salt, Hayle, Cornwall - Sat 7th April
A fun night was had by all and the Salt Bar rocked! A million thanks to everyone who organised/helped, donated prizes and came to party the night away, raising a grand total of £690!! ($1,119) Photos of this event to come! see facebook photo's
2011 - Oxford Half Marathon – Sunday 25th September
Naitbabies would like to thank Professor Mike Murphy, who ran in an inspiring time of 2hrs 4mins!!! Raising a superb total of £1,700. To view photos of this event click Gallery
"Lovely picture of Archie and Nait bear with Archie's new sensory Bubble Tube"
To view more pictures go to the Our Picture Gallery.
New Story - Bebbington Family from Corndale, New South Wales, Australia.
New Story - Ravenhall Family from West Midlands, England.
New Story - Haggard Family from Illinois, Missouri USA.
Prophylix Pharma AS (PPAS) is a Norwegian Biotech company whose aim is to develop a prophylactic medicinal product that will prevent NAIT/FNAIT. For further information visit www.prophylixpharma.com.
Nait and his sister Naitalie are traveling around the world meeting families affected by the disease that they are named after, Neonatal Alloimmune Thrombocytopenia. They are making new friends, having adventures and raising awareness wherever they go!
Nait has just arrived in Melbourne, Australia to stay with Kylie May and her family!! and Naitasha has arrived at Holbrook, New York, USA with Stephanie Volpe and family!!
Follow Nait on his adventure across the globe at blog.naitbabies.org
Follow Naitalie on her adventure across the globe at naitalie.blogspot.com
World Map of where Nait and Naitalie have travelled
You can scroll, zoom in/out, click on a marker for more info and click the arrow on the top right of map for a list of places.
Introduction
Neonatal Alloimmune Thrombocytopenia (NAIT) is a blood-related disease that affects expectant mothers and their babies.
Most people are familiar with the red blood cells that make up the majority of the blood in our bodies, but may not be aware of a second type of cell in our blood stream called platelets. These small cells are responsible for stopping bleeding in the human body.
Neonatal Alloimmune Thrombocytopenia is a disease that develops when platelets in the pregnant mother and her baby become incompatible and cannot exist together.
For complete booklet, which discusses the causes and treatment of Neonatal Alloimmune Thrombocytopenia, and answers frequently asked questions about this disease click here.
Written by: Dr Kenneth J Moise, Jr., MD Visiting Professor, Department of Obstetrics, Gynecology and Reproductive Sciences.
Co Director, Texas Fetal Center. The University of Texas Medical School at Houston, Texas, USA.
This booklet can also be downloaded as a .pdf file.
Founder of Naitbabies.org:
Thea Palmer, England, UK.
Founder of the Nait Yahoo Health Group:
Stephanie Volpe, USA
To read Steph's story 'How the Yahoo Support Group began' click here