Who we are:
Naitbabies is a small Charitable Incorporated Organisation registered in the UK in 2011 and run by families who have rare but serious platelet condition called Fetal and neonatal alloimmune thrombocytopenia – FNAIT.
FNAIT results from incompatibility between parents for platelet-specific antigens, which may affect the fetal platelet count. It is the most common cause of severely low platelets in an otherwise healthy fetus/neonate.
FNAIT may cause babies to bleed into their brain (ICH) or/and other major organs and may result in death or lifelong disabilities.
What we believe:
We believe that all babies have an equal right to life.
Naitbabies mission is to be a strong voice for parents, children and families who have been diagnosed with, or suspect that they might have the platelet condition Fetal and neonatal alloimmune thrombocytopenia.
Our objectives are:
1) The relief of sickness and the preservation and protection of good health of parents, children and their families and carers who have or are affected by the platelet condition FNAIT – Fetal and neonatal alloimmune thrombocytopenia (also known as NAIT or FMAIT) in particular by the provision of support, advocacy and practical assistance.
2) To carry out, or to provide funds to support research into FNAIT, its causes, treatment and prevention and publish the useful results of such research; and
3) To advance the education of the public, in particular those involved in the diagnosis, treatment and care of those suffering from FNAIT.
Is to see prenatal screening of all pregnant women for the platelet disorder Fetal and neonatal alloimmune thrombocytopenia.