- Rallybio Announces Collaboration to Advance Therapeutic Solutions for Pregnant Individuals at Risk of Fetal and Neonatal Alloimmune Thrombocytopenia (FNAIT) April 10, 2024 at 4:01 PM EDT PDF Version – Rallybio to Receive Funding for FNAIT Awareness Initiative and Equity Investment from Johnson & Johnson – NEW HAVEN, Conn.–(BUSINESS WIRE)–Apr. 10, 2024– Rallybio Corporation (Nasdaq: RLYB), a ...
- FNAIT Awareness Week 25 – 31 March 2024 This is the week our support group members from all over the world share their stories – how Fetal and neonatal alloimmune thrombocytopenia has affected their lives and their families. Baby Lily Harrison suffered severe brain damage due to intra-cranial haemorrhages caused by ...
- Rallybio Presents Natural History Study for Fetal and Neonatal Alloimmune Thrombocytopenia at the 65th American Society of Hematology Annual Meeting. December 9 2023 FNAIT Natural History Study to Inform Frequency of FNAIT Risk in a Broad and Diverse Population of Pregnant Women. Study Designed to Provide a Contemporary Control Dataset to Support a Future Registrational ...
- 26 October 2023 Thijs W de Vos, MD. Leiden University Medical Centre, Leiden, Netherlands. ‘’Natural history of human platelet antigen 1a-alloimmunised pregnancies: a prospective observational cohort study.’’ https://www.thelancet.com/journals/lanhae/article/PIIS2352-3026(23)00271-5/fulltext Interpretation/ Summary – ‘’our data suggest that, without intervention, the incidence of major clinically detectable bleeding in FNAIT is estimated as 11 (95% CI 0–32) per 10 000 ...
- ‘The Student Voice Prize’ October 2023 Naitbabies took part in the 2023 Student Voice Prize being run by M4RD – Medics for Rare Diseases and the Rare Beacon organisation. The Student Voice Prize is an annual, international essay competition that raises the profile of rare diseases within the medical field, particularly with medical students, nurses ...
- “Accessibility of Medical Products for Rare Diseases” July 2023 In July we received an invitation from Doctor Eva Hilberg from Sheffield University, to participate in a research project in the United Kingdom regarding access to Orphan Drugs. In 2014 Thea Palmer, Chair of Naitbabies, was invited to speak on behalf of FNAIT families as part ...