- Baby baptised at birth after life-threatening brain bleed defies odds to make full recovery Logan’s parents refused to have a termination despite their daughter having a greater than 50% risk of severe handicap Despite having a brain bleed Logan is hitting all the usual milestones at four months Logan diagnosed with Neonatal Alloimmune Thrombocytopenia after ...
- Interview with Dr Jens Kjeldsen-Kragh MD PhD (Story by Becky Robinson) http://www.prophylixpharma.com We are excited to announce that Naitbabies have been asked to join the Sounding Board for Prophylix Pharma AS (PPAS) which also includes Professor Dick Oepkes, Professor Stanislaw Urbaniak and Professor James B Bussell. PROFNAIT is a collaborative project aiming to develop the ...
- Health Check: Life-threatening condition affects newborns The Henshall Family Deep Thought Thursdays -Jenn’s Blog Original Article Jennifer Henshall and her sister Christine Laliberte have a lot in common. They each have a toddler. Jennifer has a 2-year-old girl named Clara. Christine has a 3-year-old named Brody. Both are pregnant too, and due only a couple ...
- Nia Lewis, Aled, Sion and Elain. Link to original article.pdf(In Welsh, English translation below) The hidden condition that kills in the womb According to a mum from the Bangor area, there’s a need to raise awareness of a rare blood disorder that can affect babies whilst in the womb… Days after her first child had ...
- Travelling teddy bear visits Vernon River ‘miracle’ toddler Link to original article peicanada.com By Jonathan Charlton jonathan@peicanada.com When Lincoln Drake was just a few hours old he had a blood transfusion to save his life. At the time doctors were trying to treat some complications, including him having trouble breathing. Blood tests revealed he had ...
- SWAN UK is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions. Becky told the story of her son Ethan’s birth and how he was diagnosed with Nait, on SWAN UK’s blog thinking that maybe someone would recongnise the symptoms in their undiagnosed baby. This ...