“My name is Kent and in Aug 2014 I became grandad to an amazing little boy called Raife.
Soon after his birth he was found to have a fairly rare condition and became a member of the little known about gang of naitbabies.
It has brought to our attention a small charity fighting a big cause that needs some support.
So here I am, trying to raise money for something close to my heart and tick a challenge off my bucket list before I’m 50!”
To support Kent please donate here THANK YOU!! 
