SWAN UK is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions. Becky told the story of her son Ethan’s birth and how he was diagnosed with Nait, on SWAN UK’s blog thinking that maybe someone would recongnise the symptoms in their undiagnosed baby. This ...
Mother fighting for prenatal screening of blood disease Link to original article When Marin MacCallum’s son Lincoln was born 11 months ago, no one knew he could have endured massive brain damage or that he could have died. He has a condition called Neonatal Alloimmune Thrombocytopenia (known as NAIT). He was born with a platelet ...
A bear that is set to travel across the globe made a stop in Whonnock By Sylver McLaren, The Times August 25, 2011 Read more: http://www.mrtimes.com/health/Teddy+teaches+about+blood+disorder/5304448/story.html#ixzz20SZcqDPx Photograph by: Sylver McLaren , TIMES They are happy and healthy siblings who are just like regular kids, the only difference is that they were born with a rare ...
Louise Gill’s artile in The Donegal News, North West Ireland, Friday 15th July, 2011 Link to pdf file of original article Louise Gill with her sons Rory, Matthew and Daniel as they celebrate Daniel’s fourth birthday. A FALCARRAGH mother of three boys is one of three known sufferers in Ireland from a rare blood disorder ...
Rachael Walker’s recent fundraising and article in the Wakefield Express Newspaper in the U.K Link to original article. Fundraisers L-R Rachael Walker,Otto Walker,Tove Walker, Helen Richford and Becky Wain. AN expectant mum will give up all gifts for her new baby to help raise awareness of a birth condition which has put its life at ...