- On April 13th 2023, at Leiden Medical University Center, The Netherlands, Thijs W De Vos presented his doctorate thesis ”Fetal and Neonatal Alloimmune Thrombocytopenia: The proof of the pudding is in the eating”. The knowledge provided in this dissertation forms a solid base for questioning justification for a screening program for #fnait. In ...
- MEET NAIT MIRACLE CHRIS!!!! Chris is 23 years old. He was born with a rare disease with life-threatening consequences called Fetal and Neonatal Alloimmune Thrombocytopenia (FNAIT). His mother’s email address is “our miracle kids” based on the miracle that Chris survived FNAIT. She shared their story to give hope to others. There is no routine ...
- Rallybio Announces Collaboration to Advance Therapeutic Solutions for Pregnant Individuals at Risk of Fetal and Neonatal Alloimmune Thrombocytopenia (FNAIT) April 10, 2024 at 4:01 PM EDT PDF Version – Rallybio to Receive Funding for FNAIT Awareness Initiative and Equity Investment from Johnson & Johnson – NEW HAVEN, Conn.–(BUSINESS WIRE)–Apr. 10, 2024– Rallybio Corporation (Nasdaq: RLYB), a ...
- FNAIT Awareness Week 25 – 31 March 2024 This is the week our support group members from all over the world share their stories – how Fetal and neonatal alloimmune thrombocytopenia has affected their lives and their families. Baby Lily Harrison suffered severe brain damage due to intra-cranial haemorrhages caused by ...
- Rallybio Presents Natural History Study for Fetal and Neonatal Alloimmune Thrombocytopenia at the 65th American Society of Hematology Annual Meeting. December 9 2023 FNAIT Natural History Study to Inform Frequency of FNAIT Risk in a Broad and Diverse Population of Pregnant Women. Study Designed to Provide a Contemporary Control Dataset to Support a Future Registrational ...
- 26 October 2023 Thijs W de Vos, MD. Leiden University Medical Centre, Leiden, Netherlands. ‘’Natural history of human platelet antigen 1a-alloimmunised pregnancies: a prospective observational cohort study.’’ https://www.thelancet.com/journals/lanhae/article/PIIS2352-3026(23)00271-5/fulltext Interpretation/ Summary – ‘’our data suggest that, without intervention, the incidence of major clinically detectable bleeding in FNAIT is estimated as 11 (95% CI 0–32) per ...