- Cambridge Rare Disease Network are hosting #RAREsummit19 which takes place on 23rd September at the Wellcome Genome Campus, Hinxton, Cambridgeshire, England. #RAREsummit19 is a 1 day event focusing on patient-centricity in rare disease progress; highlighting exemplars of patient, patient advocacy groups and carers involvement in the development of drugs, healthcare and assistive technologies. Taking place ...
- READ THE LATEST EXCITING NEWS NEWS RELEASE REGARDING THE DEVELOPMENT OF NAITgam!!!!!! Statement release from Soren Weis Dahl CEO, #Prophylix AS regarding the current status of the manufacture and development of ~#NAITgam. www.prophylix.com/news-and-links/
Primary Care and Public Health show National Exhibition Centre, Birmingham. Naitbabies hosted a stand at the two day Primary Care show held at the NEC Birmingham on 15 – 16 May. The weather was glorious and brought thousands of people to visit the show, We had an excellent 2 days with much interest being shown ...
Good luck to Kellie Burville (16221) and Alice Buttle (32694) running this years London Marathon on Sunday 28 April in aid of Naitbabies. Alice is running this years London Marathon in honour of her nephew Josh who was born with neonatal alloimmune thrombocytopenia. To support Alice please click here NAIT mum ...
ICTMG – International Collaboration for Transfusion Medicine Guidelines. Established in 2011. Members include transfusion experts from all over the world. See the FNAIT publications, presentation, treatment guidelines, podcasts for physicians and patients, patient leaflets in English, Spanish, French, Portuguese, Italian, German and Japanese. ICTMG website www.ictmg.org/fnait-1 www.naitbabies.org/resources/ictmg-fnait-guidance-for-evidence-based-practice-march-2019/
Read Jackie Derrett’s story in the Guardian national newspaper ‘How NAIT changed our lives‘ after her daughter suffered a huge bleed in her brain before birth. #RareDiseaseDay #MFM #midwives #ICH
