The Merlin School Putney, South West London recently held a raffle and a Jazz Evening for parents raising the a magnificent total of £2,141.75!!! Alice and Tom Bacon recently went through a very tough time after giving birth to son Rafferty who was found to have NAIT. Alice is a teacher at Merlin School. Rafferty ...
All Saint’s Church Newmarket All in to Raise Funds For Naitbabies!! All welcome for an afternoon of music, performing arts and poetry to raise funds for @naitbabies Sunday 28 October 2 – 4pm Dr Cédric Ghevaert from the Cambridge Stem Cell Institute spoke to @BBCSuffolk on Thursday about the concert! Please listen here https://www.bbc.co.uk/sounds/play/p06m89f4 Tickets ...
Two families whose children had FNAIT, took part in the Kiltwalk fundraising event held in Glasgow, on the 29 April. Sian Urquhart from Dumbarton and mum to 2 NAIT babies. Ewan 7, born in 2010 with a count of 4k – untreated as FNAIT was unknown during her pregnancy as there is still no ...
Naitbabies have a stand at the Primary Care and Public Health show, the leading event for GPs, federations, CCGs, primary care and community pharmacists, nurses, midwives and other health care professionals at the NEC Birmingham on the 16-17 May. This will be our 4th major stand. Not one midwife of the hundreds we have spoken ...
Rare Disease Day!! read Gillian’s #NAIT story in today’s #Guardian national newspaper and on-line!!! ❤️ #FNAIT #FMAIT http://www.healthawareness.co.uk/rare-diseases/how-the-rare-genetic-disorder-nait-has-affected-my-family #RareDiseases #ShowYourRare #RareDiseaseDay #MediaplanetUK
On Sunday 8 October my amazing sister Rebecca ran 13.1 miles in the Royal Parks Half Marathon, raising funds and awareness for NAITbabies. We, like most other people, had never heard of NAIT until my son James was born 3 years ago. Shortly after he was born, a midwife found petechiae and bruising all ...