Two families whose children had FNAIT, took part in the Kiltwalk fundraising event held in Glasgow, on the 29 April. Sian Urquhart from Dumbarton and mum to 2 NAIT babies. Ewan 7, born in 2010 with a count of 4k – untreated as FNAIT was unknown during her pregnancy as there is still no ...
Naitbabies have a stand at the Primary Care and Public Health show, the leading event for GPs, federations, CCGs, primary care and community pharmacists, nurses, midwives and other health care professionals at the NEC Birmingham on the 16-17 May. This will be our 4th major stand. Not one midwife of the hundreds we have spoken ...
Rare Disease Day!! read Gillian’s #NAIT story in today’s #Guardian national newspaper and on-line!!! ❤️ #FNAIT #FMAIT http://www.healthawareness.co.uk/rare-diseases/how-the-rare-genetic-disorder-nait-has-affected-my-family #RareDiseases #ShowYourRare #RareDiseaseDay #MediaplanetUK
On Sunday 8 October my amazing sister Rebecca ran 13.1 miles in the Royal Parks Half Marathon, raising funds and awareness for NAITbabies. We, like most other people, had never heard of NAIT until my son James was born 3 years ago. Shortly after he was born, a midwife found petechiae and bruising all ...
A fabulous evening raising a magnificent £18,000!!!!!!!!!!! ❤️❤️ #NAITbabies would like to say a HUGE THANK YOU to Dion McKeown, Simone Phillips, Natalie Leighton, Deina Johnson and Stacy Corke for their immense amount of hard work organising the fabulous Naitbabies #Charity #Ball this evening!!!!!! Many thanks to all the wonderful people and firms ...