Naitbabies took part in this years Rare Disease Day with a story about Ethan 6, by mum Becky Robinson in the Independent newspaper. Mike Murphy, Professor of Transfusion Medicine at Oxford University, answered questions about NAIT, what it is and the possibility of future screening – read it here- We are delighted to have been chosen as one The Psigma Foundation’s charities for 2016-2017 along with The Cure Parkinson’s Trust and Restart. The Foundation is an independent charitable foundation formed 2 years ago by Psigma Investment Management 11 The Strand, London (UK) and part of the Punter Southall Group. Links: Fundraising page Virgin Money ...
- New research suggests that fetal hemostasis is distinct and that impairment of angiogenesis rather than thrombocytopenia likely causes FNAIT-associated ICH. Additionally, results indicate that maternal IVIG therapy can effectively prevent this devastating disorder. Maternal anti-platelet β3 integrins impair angiogenesis and cause intracranial hemorrhage
- Many women diagnosed with NAIT suffer multiple miscarriage. This is the first study to investigate the pathophysiology between miscarriage and NAIT. From researchers in Toronto, Canada. Natural Killer Cells Contribute to Pathophysiology of Placenta Leading to Miscarriage in Fetal and Neonatal Alloimmune Thrombocytopenia
Hope for rare disease blood carriers PROFNAIT and how this project could save babies lives……. by Professor Jens KJeldsen-Kragh NAIT occurs when the platelet type in the pregnant mother is incompatible with that of her baby. As a result, the mother’s may produce antibodies that destroy the platelets of the feotus, compromising its ability ...
Read how Andrea Palmer and her daughter Senen age 7 have been affected by NAIT in the ‘Genetic disorders Campaign 2015’ featured in The Independent newspaper supplement on 18 September! http://www.healthawareness.co.uk/genetics/hope-for-rare-blood-disease-carriers-and-nait-case-study