Rare Disease Day!! read Gillian’s #NAIT story in today’s #Guardian national newspaper and on-line!!! ❤️ #FNAIT #FMAIT http://www.healthawareness.co.uk/rare-diseases/how-the-rare-genetic-disorder-nait-has-affected-my-family #RareDiseases #ShowYourRare #RareDiseaseDay #MediaplanetUK
On Sunday 8 October my amazing sister Rebecca ran 13.1 miles in the Royal Parks Half Marathon, raising funds and awareness for NAITbabies. We, like most other people, had never heard of NAIT until my son James was born 3 years ago. Shortly after he was born, a midwife found petechiae and bruising all ...
A fabulous evening raising a magnificent £18,000!!!!!!!!!!! ❤️❤️ #NAITbabies would like to say a HUGE THANK YOU to Dion McKeown, Simone Phillips, Natalie Leighton, Deina Johnson and Stacy Corke for their immense amount of hard work organising the fabulous Naitbabies #Charity #Ball this evening!!!!!! Many thanks to all the wonderful people and firms ...
Massive thanks to Silas and Becky from Alton, Hampshire for sponsoring our logo on Team a-adventures ‘Shark Club’ section. a-adventures.co.uk/200-Shark-club We wish the best of luck to all, especially the three Andy’s a-adventures team rowing in The Talisker Whiskey’s 2016/17 Atlantic Challenge – the world’s toughest race across the Atlantic and raising money for three ...
In 2015 we partnered with Mediaplanet UK on the 2015 Genetic Disorders Campaign in The Guardian newspaper and online at http://www.healthawareness.co.uk/genetics This year Genetics Actor, TV presenter and comedian Warwick Davis speaks about his life with a rare genetic condition….
