Who we are:
Naitbabies are a patient organisation run by families who have a serious genetic disorder called neonatal alloimmune thrombocytopenia – NAIT (also known as FNAIT or FMAIT). This may cause unborn or newborn babies to bleed into their brain (ICH) and/or other major organs due to the maternal immune response against baby’s blood platelet antigens and may result in death or lifelong disabilities.
What we believe:
We believe that all babies have an equal right to life.
Naitbabies mission is to be a strong voice for parents, children and families who have been diagnosed with, or suspect that they might have the genetic disorder neonatal alloimmune thrombocytopenia.
Our objectives are:
1) The relief of sickness and the preservation and protection of good health of parents, children and their families and carers who have or are affected by the genetic disorder neonatal alloimmune thrombocytopenia (also known as NAIT or FNAIT) in particular by the provision of support, advocacy and practical assistance as the trustees shall think fit;
2) To carry out, or to provide funds to support research into NAIT/FNAIT, its causes, treatment and prevention and publish the useful results of such research; and
3) To advance the education of the public, in particular those involved in the diagnosis, treatment and care of those suffering from NAIT/FNAIT.
Is to see prenatal screening of all pregnant women for the disease neonatal alloimmune thrombocytopenia.