Events

RAREfest20 A Global, virtual festival which puts rare diseases into the spotlight!   Despite the fact rare diseases affect one in seventeen people, those affected tell Cambridge Rare Disease Network they’ve been all but forgotten during the last six months of the COVID-19 pandemic. With this in mind, CRDN is making it their priority to ...

  NAIT baby Neve Pritchard-Doughty raises awareness with the 1st Aylestone Brownies in Leicester.   My name is Neve and I am 10 years old. I am a 1st Aylestone Brownie in Leicester. I am working to achieve my charity badge. To earn this I need to choose a charity to promote, say why I ...

FNAIT Awareness Week 25 – 31 March 2020. We now have over 1200 members of our Parents Support Group and many took part in spreading awareness about fetal and neonatal alloimmune thrombocytopeia. Telling their stories and sharing photos on social media sites, talking about how this disorder has affected their lives. Posters belowwith facts about ...

February 11 2020 Maternity Midwifery and Baby Festival Croke Park, Dublin      

‘Saving Babies Lives – Reducing Still Birth’   We exhibited at the following Health Care UK conferences. The first held on 11 July at, The Studio, Manchester. The second held on 11 November, at the De Vere West One Conference Centre, London. This conferences focused on the important issue of Saving Babies Lives: Reducing Stillbirth, ...

  Stephanie and Dan Hewlett’s daughter Charlotte was born with NAIT in 2017, and diagnosed shortly after birth, with a platelet count of only 3k. Steph said ”We had no idea about the condition, or just how lucky she had been.”       Steph’s father, Paul Templeton from Ipswich, Suffolk has very kindly donated ...