News

Baby baptised at birth after life-threatening brain bleed defies odds to make full recovery Logan’s parents refused to have a termination despite their daughter having a […]

Interview with Dr Jens Kjeldsen-Kragh MD PhD (Story by Becky Robinson) http://www.prophylixpharma.com We are excited to announce that Naitbabies have been asked to join the Sounding […]

Health Check: Life-threatening condition affects newborns The Henshall Family Deep Thought Thursdays -Jenn’s Blog Original Article Jennifer Henshall and her sister Christine Laliberte have a lot […]

Nia Lewis, Aled, Sion and Elain. Link to original article.pdf(In Welsh, English translation below) The hidden condition that kills in the womb According to a mum […]

Travelling teddy bear visits Vernon River ‘miracle’ toddler Link to original article peicanada.com By Jonathan Charlton jonathan@peicanada.com When Lincoln Drake was just a few hours old […]

SWAN UK is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions. Becky told the story […]