- On April 13th at #leidenuniversity Thijs W De Vos will present his #doctorate #dissertation which provides a solid base for questioning justification for a screening program for #fnait This year 2023 the Dutch Health Council will consider screening!!! Thank you for your thesis Thijs!!
- 25 – 31 March – FNAIT Awareness Week 2023. Our awareness week competition was won this year by Stepehen Cummings one of our FNAIT families living in Northern Ireland. Stephen and Shannon have two NAIT sons. Jaxon, the eldest has been severely affected by bleeds into his head before his birth. Alfie was treated with ...
- 6 March 2023 Latest news on the development of a prophylactic treatment for FNAIT. NEW HAVEN, Conn.–(BUSINESS WIRE)–Mar. 6, 2023– Rallybio Corporation (Nasdaq: RLYB) today announced that clinical proof-of-concept has been achieved in a Phase 1b study for RLYB212, an anti-HPA-1a monoclonal antibody for the prevention of fetal and neonatal alloimmune thrombocytopenia (FNAIT). Results ...
- Rallybio Announces Positive Preliminary Results for RLYB212, an anti-HPA-1a Monoclonal Antibody for the Prevention of Fetal and Neonatal Alloimmune Thrombocytopenia September 28, 2022 — Preliminary data from the ongoing Phase 1b study shows RLYB212 rapidly and completely eliminates transfused HPA-1a positive platelets. — Proof-of-Concept Data Expected in 1Q 2023. Read the full news ...
- ‘He’s never alone’ Dad has his head tattooed to honour his son’s brain surgery. Carlos Marquez, from North Bergen, New Jersey, USA wanted to get a tattoo to honor his son Luke, 1, who has hydrocephalus due to FNAIT and needed a shunt to drain the excess fluid that builds up in his ...
- Cambridge Rare Disease Network Festival #RAREfest22 – 25th-26th November 2022 RAREfest22 has patients at its heart with science and technology running through its veins! Cambridge Rare Disease Network’s festival is back in person showcasing expert speakers, live podcasts, panel discussions hands-on exhibits and film from the world of science, tech, and advocacy. Join us ...