- ‘The Student Voice Prize’ October 2023 Naitbabies took part in the 2023 Student Voice Prize being run by M4RD – Medics for Rare Diseases and the Rare Beacon organisation. The Student Voice Prize is an annual, international essay competition that raises the profile of rare diseases within the medical field, particularly with medical students, nurses ...
- “Accessibility of Medical Products for Rare Diseases” July 2023 In July we received an invitation from Doctor Eva Hilberg from Sheffield University, to participate in a research project in the United Kingdom regarding access to Orphan Drugs. In 2014 Thea Palmer, Chair of Naitbabies, was invited to speak on behalf of FNAIT families as part ...
- June 24 – 28 2023 Rallybio presented the important results of their FNAIT Program ‘RLYB212’ at the ‘’International Society of Thrombosis and Haemostasis Congress – ISTH2023’’ held at the Palais des Congrès de Montréal, Quebec, Canada. https://www.isth2023.org/ ‘’Dose-Dependent Elimination of HPA-1a Platelets by Subcutaneous RLYB212, a Monoclonal Antibody to Prevent Fetal and Neonatal Alloimmune ...
- On April 13th at #leidenuniversity Thijs W De Vos will present his #doctorate #dissertation which provides a solid base for questioning justification for a screening program for #fnait This year 2023 the Dutch Health Council will consider screening!!! Thank you for your thesis Thijs!!
- 25 – 31 March – FNAIT Awareness Week 2023. Our awareness week competition was won this year by Stepehen Cummings one of our FNAIT families living in Northern Ireland. Stephen and Shannon have two NAIT sons. Jaxon, the eldest has been severely affected by bleeds into his head before his birth. Alfie was treated with ...
- 6 March 2023 Latest news on the development of a prophylactic treatment for FNAIT. NEW HAVEN, Conn.–(BUSINESS WIRE)–Mar. 6, 2023– Rallybio Corporation (Nasdaq: RLYB) today announced that clinical proof-of-concept has been achieved in a Phase 1b study for RLYB212, an anti-HPA-1a monoclonal antibody for the prevention of fetal and neonatal alloimmune thrombocytopenia (FNAIT). Results ...