- We are pleased to announce that our Nait Awareness Week will be 25th to 31st March 2014!! We hope everyone will share this date and help us to raise awareness of this under-diagnosed condition. More information will be posted over the coming weeks.
- Tromplate® the medicine being developed by the PROFNAIT Project, which has already been granted Orphan Drug Status in the EU has just been granted Orphan Drug Status by the FDA in the US!!!! http://www.profnait.eu/en-parents/donate-plasma/
- This will be a great family day out with displays from all the services – come and see us there!!! to read more visit our events page
- Disease is easier to bear with Nait! Nait bear has been visiting central north island, Stratford, New Zealand with little Hayley Ryan and her parents Melitta Marshall-Smith and Aaron Ryan. Read their story in the 13th February edition of the Stratford Press newspaper.
- We are thrilled that Richard Robinson, Captain of Llanishen golf club, north Cardiff, Wales has chosen Naitbabies to be his nominated charity for this year. Richard’s son David and his wife Jo lost their baby daughter Isabelle as a result of NAIT. Jo has also been a great supporter running in the Cardiff half marathon ...