- Nia Lewis, Aled, Sion and Elain. Link to original article.pdf(In Welsh, English translation below) The hidden condition that kills in the womb According to a mum from the Bangor area, there’s a need to raise awareness of a rare blood disorder that can affect babies whilst in the womb… Days after her first child had ...
- Travelling teddy bear visits Vernon River ‘miracle’ toddler Link to original article peicanada.com By Jonathan Charlton jonathan@peicanada.com When Lincoln Drake was just a few hours old he had a blood transfusion to save his life. At the time doctors were trying to treat some complications, including him having trouble breathing. Blood tests revealed he had ...
- SWAN UK is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions. Becky told the story of her son Ethan’s birth and how he was diagnosed with Nait, on SWAN UK’s blog thinking that maybe someone would recongnise the symptoms in their undiagnosed baby. This ...
- Mother fighting for prenatal screening of blood disease Link to original article When Marin MacCallum’s son Lincoln was born 11 months ago, no one knew he could have endured massive brain damage or that he could have died. He has a condition called Neonatal Alloimmune Thrombocytopenia (known as NAIT). He was born with a platelet ...
- A bear that is set to travel across the globe made a stop in Whonnock By Sylver McLaren, The Times August 25, 2011 Read more: http://www.mrtimes.com/health/Teddy+teaches+about+blood+disorder/5304448/story.html#ixzz20SZcqDPx Photograph by: Sylver McLaren , TIMES They are happy and healthy siblings who are just like regular kids, the only difference is that they were born with a rare ...
- Louise Gill’s artile in The Donegal News, North West Ireland, Friday 15th July, 2011 Link to pdf file of original article Louise Gill with her sons Rory, Matthew and Daniel as they celebrate Daniel’s fourth birthday. A FALCARRAGH mother of three boys is one of three known sufferers in Ireland from a rare blood disorder ...